Difficulties in a Father’s Day-to-Day Care of a Child with A Chronic Illness

Authors

  • Dennyse Cristina Macedo da Silva Universidade Federal da Paraíba
  • Altamira Pereira da Silva Reichert Universidade Federal da Paraíba
  • Vanessa Medeiros da Nóbrega Universidade Federal da Paraíba
  • Meryeli Santos de Araújo Dantas Universidade Federal da Paraíba
  • Gabriela Lisieux Lima Gomes Universidade Federal da Paraíba
  • Jaqueline Queiroz de Macedo Universidade Federal da Paraíba
  • Erika Acioli Gomes Pimenta Universidade Federal da Paraíba
  • Isolda Maria Barros Torquato Universidade Federal de Campina Grande
  • Neusa Collet Universidade Federal da Paraíba

DOI:

https://doi.org/10.3823/2014

Keywords:

Paternity, Chronic illness, Parent-child relationships, Family

Abstract

Objective: To understand the difficulties experienced by fathers of children with chronic illnesses in terms of day-to-day childcare.

Methodology: A descriptive, qualitative study conducted between June and August 2014 by means of semi-structured interviews with 10 participants who were fathers of children with chronic illnesses. The data were subjected to thematic analysis.

Results: The fathers experienced many difficulties in terms of day-to-day care: emotional burden, trying to balance work with caring for their child, administering medication, hospitalisation, and sharing the child's care with the mother. Because the fathers assumed financial responsibility for their homes, they lacked time to better serve their children and to foster the emotional structure needed to support the duties and constraints that arise because of their absence.

Conclusion: The fathers needed guidance and support from the health team to overcome the difficulties experienced in day-to-day life and become better prepared to understand and fulfill their roles in caring for children with chronic illness effectively.

References

Leach LS, Olesen SC, Butterworth P, Poyser C. New Fatherhood and psychological distress: a longitudinal study of Australian men. Am J Epidemiol. 2014; 180(6): 582-9. Available at: http://dx.doi.org/10.1093/aje/kwu177.

Moreira MC, Gomes R, Sá MR. Doenças crônicas em crianças e adolescentes: uma revisão bibliográfica. Ciênc Saúde Coletiva. 2014; 19(7): 2083-94. Available at: http://dx.doi.org/10.1590/1413-81232014197.20122013.

Mashoodh T, Ives J. Men Maternity and moral residue: negotiation the moral demands of the transition to first time fatherhood. Sociology of Health & Illness. 2012; 36(7) 1003-19. Available at: http://dx.doi.org/10.1111/1467-9566.12138

Atkin K, Bergh’s M, Dyson S. 'Who's the guy in the room?' Involving fathers in antenatal care screening for sickle cell disorders. Social Science & Medicine. 2015; 128: 212-9. Available at: http://dx.doi.org/10.1016/j.socscimed.2015.01.039.

Sampaio KJA, Villela WV, Oliveira EM. Meanings attributed to fatherhood by adolescents. Acta Paul Enferm. 2014; 27(1): 2-5. Available at: http://dx.doi.org/10.1590/1982-0194201400002

Broger B, Zeni M. Fathers’ Coping Mechanisms Related to Parenting a Chronically Ill Child: Implications for Advanced Practice Nurses. J Pediatr Health Care. 2011; 25(2): 96-104. Available at: http://dx.doi.org/10.1016/j.pedhc.2009.09.004.

Bossardi CN, Vieira ML. Cuidado paterno e desenvolvimento infantil. Rev cienc hum 2010; 44(1): 205-21. Available at: http://dx.doi.org/10.5007/2178-4582.2010v44n1p205

Felizardo MJ, Lima CC, Moreira DS. The paternal view about diabetes mellitus type 1. Pediatr Mod. 2014; 14(1): 19-21. Available at: http://www.moreirajr.com.br/revistas.asp?fase=r003&id_materia=5668.

Manfroi EC, Macarini SM, Vieira ML. Parental behavior and the role of father in the child development. J Hum Growth Dev. 2011; 21(1): 59-69. Available at: http://pepsic.bvsalud.org/pdf/rbcdh/v21n1/07.pdf.

Minayo MC. O desafio do conhecimento: pesquisa qualitativa em saúde 5a ed. São Paulo: Hucitec; 2010.

Dupas G, Silva AC, Nunes MDR, Ferreira NMLA. Childhood cancer: the father's experience. Reme, Rev Min Enferm. 2012; 16(3), 348-54. Available at: http://www.dx.doi.org/S1415-27622012000300006

Hockenberry MJ, Wilson D. Wong, fundamentos de enfermagem pediátrica. 9a ed. Rio de Janeiro: Elsevier; 2014.

Abraham E, Hendler T, Shapira-Lichter I, Kanat-Maymone Y, Zagoory-Sharona O, Feldmana R. Father´s brain sensitive to childcare experiences. Proc Natl Acad Sci USA. 2014; 111(27): 9792-7. Available at: http://www.dx.doi.org/10.1073/pnas.1402569111.

Knight L, Yamin AE. "Without a mother": caregivers and community members' views about the impacts of maternal mortality on families in KwaZulu-Natal, South Africa. Reprod Health. 2015; 12(Suppl.1): 407-17. Available at: http://www.dx.doi.org/10.1186/1742-4755-12-S1-S5.

Swallow V, Lambert H. Fathers and mothers developing skills in managing children’s long-term medical conditions: how do their qualitative accounts compare? Child care health dev. 2010; 37(4): 512-23. Available at: http://www.dx.doi.org/10.1111/j.1365-2214.2011.01219.x

Hechler T, Vervoot T, Hamann M, Tietze AL, Vocks S, Goubert L, et al. Parental catastrophizing about their child's chronic pain: are mothers and fathers different? Eur J Pain. 2011; 15(5): 1-9. Available at: http://www.dx.doi.org/10.1016/j.ejpain.2010.09.015.

Guillamón N, Nieto R, Pousada M, Redolar D, Muñoz E, Hernández E, et al. Quality of life and mental health among parents of children with cerebral palsy: the influence of self-efficacy and coping strategies. J Clin Nurs. 2013; 22(11-12): 1579-90. Available at: http://www.dx.doi.org/10.1111/jocn.12124.

Macedo EC, Silva LR, Paiva MS, Ramos MNP. Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review. Rev Latino-Am Enfermagem. 2015; 23(4): 769-77. Available at: http://dx.doi.org/10.1590/0104-1169.0196.2613

Macfayden A, Swalow V. Involving fathers in research. Journal for Specialists in Pediatric Nursing. 2011; 16(3): 216-9. Available at: http://dx.doi.org/10.1111/j.1744-6155.2011.00287.x

Feeley CA, Turner-Henson A, Christian BJ, Avis KT, Heaton K, Lozano D, Su X. Sleep Quality, Stress, Caregiver Burden, and Quality Of Life in Maternal Caregivers of Young Children With Bronchopulmonary Dysplasia. J Pediatr Nurs. 2014; 29(1): 29-38. Available at: http://dx.doi.org/10.1016/j.pedn.2013.08.001.

Silva TP, Silva MM, Silva LJ, Silva IR, Leite JL. Contextual specificities of nursing care to hospitalized children with chronic condition. Ciênc cuid saude. 2015; 14(2): 1082-90. Available at: http://dx.doi.org/10.4025/cienccuidsaude.v14i2.23814.

Rocha MCP, Carvalho MSM, Fossa AM, Pedroso GER, Rossato LM. Necessidades e dificuldades de famílias que vivenciam a experiência de ter uma criança com hidrocefalia. Saude Rev. 2015; 15(40): 49-66. Available at: http://dx.doi.org/10.15600/2238-1244/sr.v15n40p49-66.

Downloads

Published

2016-07-14

Issue

Section

Pediatrics

Most read articles by the same author(s)