Quality of Life in Caregivers of Children and Adolescents with Mental Disorders
DOI:
https://doi.org/10.3823/1894Keywords:
Adolescent, Caregiver, Child, Quality of life, Mental disorder.Abstract
Introduction: Psychiatric disorders in childhood and adolescence are extremely prevalent, affecting approximately 1 in 10 Brazilian children. Child mental health affects all areas of development and impacts the physical and mental health of the family and in school performance, with its obvious consequences in adulthood.
Objective: The objective was to evaluate the perception of quality of life of children and adolescents with mental disorders caregiver's.
Methodology: There were participating 64 caregivers of children and adolescents with mental disorders who attend one capside at a city of Paraiba backlands. Data from samples were obtained through a socio demographic questionnaire and the quality of life questionnaire WHOQOL Bref. Data were analyzed using the statistical program Statistical Package for Social Sciences (SPSS).
Results: The results showed that sixty (93.8%) caregivers were women, 27 (42.2%) completed high school, 40 (62.5%) were housewives, 31 (48.4%) were married , 46 (71.9%) were Catholic, 55 (85.9%) were mothers of children and adolescents and the overall score for quality of life WHOQOLBref ranged from 12.5 to 62.5 (mean = 43.9 ; SD = 12.0) and that the lowest average was found in the psychological domain (m = 40.1).
Conclusion: At the end of it, the results of this study may influence on the availability of social support networks, on the creation of socio-sanitary laws, on the structure and adequacy of mental health services, since the health of children and adolescents depends on the caregiver health.References
Fleitlich BW, Goodman R. Deployment and implementation of communitary mental health services for children and adolescents [editorial]. Rev Bras Psiquiatr. 2002; 24 (1): 2.
Anselmi L, Fleitlich-B Bilyk, Menezes AM, Araujo CL, Rohde LA. Prevalence of psychiatric disorders in a Brazilian birth cohort of 11-year-olds.SocPsychiatryPsychiatrEpidemiol. 2010; 45 (1): 135-42.
Greenberg MT, Domitrovich C, Bumbarger B. The prevention of mental disorders in school-aged children: current state of the field. Prev Treat. 2001; 4 (1): 51-9.
Huang L, Stroul B, Friedman R, Mrazek P, B Friesen, Pires S, Mayberg S. Transforming mental health care for children and Their families. Am Psychol. 2005; 60 (6): 615-27.
Ferriolli SHT, IN Marturano, Puntel LP. Family background and problems in child mental health in the Family Health Program. Rev Public Health. 2007; 41 (2): 251-9.
Zarit SH. Interventions with family caregivers. In: Zarit SH, Knight BG (Eds.). A guide to psychotherapy and aging: effective clinical interventions in a life-stage context. Washington, DC, US: American PsychologicalAssociation; 1996. p.139-59.
Nakamura E. Anthropology. In: Assumpção Junior FB, Kuczynski E (Org.). Psychiatry Treaty of childhood and adolescence. Sao Paulo: Atheneu; 2003. p. 59-62.
The WHOQOL Group.Development of the World Health Organization WHOQOL-Bref Quality of Life Assessment.Psychol Med 1998; 28 (3):. 551-8. Available in: http://journals.cambridge.org/action/displayAbstractfromPage=online&aid=25793&fileId=S0033291798006667
Dantas SAN, Sawada NO Malerbo MB. Research on quality of life: review of scientific production of public universities of São Paulo.Rev Latin AmEnferm.2003; 11 (4): 532-8.
Almeida AC, Loureiro SR. Quality of life in post-TMO. In: Multidisciplinary and reform: issues, practices and policies. Annais VIII Cycle of Mental Health, 2000; Ribeirão Preto. [Resume]. Ribeirão Preto: San Francisco printing and editing; 2000. p. 65-6.
Maurin JT Boyd CB. Burden of mental illness on the family: a critical review. Arch PsychiatrNurs. 1990; 4 (2): 99-107.
THE Loukissa. Family burden in chronic mental illness: a review of research studies. J AdvNurs. 1995; 21 (2): 248-55.
Greenberg, J. S .; Kim, H.W .; Greenley, JR - Factors associated with Subjective burden in siblings of adults with severe metal illness. American Journal of Orthopsychiatry 67 (2): 231-241, 1997
Waidman MAP. Caring for families of people with mental disorders in the paradigm of institutionalization. Thesis (PhD). Florianopolis: Federal University of Santa Catarina; 2004.
Cuvero MM. Quality of life of caregivers of children and adolescents with autism. Thesis (MS). Uberlandia: Federal University of Uberlândia; 2008.
Fleck MPA, Louzada S, Xavier M, Chachamovich E, Vieira G, Santos L, Pinzon V. Application of the Portuguese version of the assessment tool of quality of life of the World Health Organization (WHOQOL-100). Rev Public Health, Rio de Janeiro. 1999; 33 (2): 198-205.
Souza Filho MD, Sousa AO, Parente ACBV, Martins MCC. Overload evaluation in family caregivers of schizophrenic adult patients. PsicolEstud. 2010; 15 (3): 639-47.
Silva, V. Quality of life of the elderly: Elderly care, duty of who ?. Magazine academic space. N.110 July 2010.
Oliveira CG, Albuquerque PB. Diversity of Results in the study of attention deficit and hyperactivity disorder. Psychology: Theory and Research. 2009; 25 (1): 93-102.
Kantorski LP, VMR Garden, Delpino GB, Lima LM, Schwartz E, Heck RM. Profile of family caregivers of community mental health services users in southern Brazil. Rev Gaucha Enferm. 2012; 33 (1): 85-92.
Quadros LCM, Gigante DP, LP Kantorski, Jardim VMR. Minor psychiatric disorders in family caregivers of community mental health services users in southern Brazil. Cad Public Health. 2012; 28 (1): 95-103.
Cavalheri SC. Transformation of the care model in mental health and its impact on the family. RevBrasEnferm. 2010; 63 (1): 51-7.
Vieira NGB, Mendes NC, Frota LMCP, Frota MA. The daily life of mothers of children with cerebral palsy. RBPs. 2008; 21 (1): 55-60.
Hoffmann MCCL, Santos DN, Mota ELA. Characterization of users and services provided by community mental health services for Children and Adolescents. Cad Public Health, Rio de Janeiro. 2008; 24 (3): 633-42.
Telles, L. E. B. (2006). Alcohol, drugs and crime. Journal of Psychiatry, 28, 69-73.
Delfini PSS, Barbosa CD, Fonseca FL, TavaresCM, Reis AOA. Users of the profile of a center for children's psychosocial care of greater São Paulo, Brazil. RevBras Growth Development Hum 2009; 19 (2):. 226-36.
Yeargin-Allsopp M, Murphy CC, Cordero JF, Decouflé P, Hollowell JG. Reported biomedical causes and associated medical conditions for mental retardation Among 10-year-old children, metropolitan Atlanta 1985 to 1987. Dev Med Child Neurol. 1997; 39 (3): 142-9.
Sequeira CAC. Adaptation and validation of Caregiver Overload Scale Zarit. RevEnferm Referência.2010; 12: 9-16. [online] Available at:http://web.b.ebscohost.com/abstract?direct=true&profile=ehost&scope=site&authtype=crawler&jrnl=08740283&AN=54284772&h=ot7I0VyUa%2bktGYU3vHK3aFtaue8PsuJZu%2bJTdMegxGaPY4VHKmCxFEd9cl%2fN9cA%2b6DU26s2gxXyOO5O9SGalKg%3d%3d&crl=c&resultNs=AdminWebAuth&resultLocal=ErrCrlNotAuth&crlhashurl=login.aspx%3fdirect%3dtrue%26profile%3dehost%26scope%3dsite%26authtype%3dcrawler%26jrnl%3d08740283%26AN%3d54284772
Fávero MAB, Santos MA. Infantile autism and familiar stress: a systematic review of the literature. Psychology: Reflection and Criticism.
Mugno D, Ruta L, D'Arrigo VG, Mazzone L. Impairment of quality of life in parents of childrem and adolescent with pervasive developmental disorder. Health Qual Life Outcomes. 2007; 5:22.
Garcia EL, Banegas JR, Perez-Regadera AG, Cabrera RH, Rodriguez-Artalejo F. Social network and health related quality of life in older adults: a population based study in Spain. Qual life Res. 2005;14:511-20.
Greenberg MT, Domitrovich C, Bumbarger B. The prevention of mental disorders in school-aged children: Current State of the field. PrevTreat. 2001;4(1):51-9.
Nakatani AYK, Souto CCS, Paulette LM, Mel TS, Souza MM. Informal caregivers of olds profile with defict of selfcare attended by Family Health Program. Nursing Eletronic Journal. (online). 2003;15(3):170-9.
Lemoas ND, Gazzola JM, Ramos LR. Taking care of patient with Alzheimer: the impact of the desease in caregiver. Health and Sociely. 2006;15(3):170-9.
Silva ST. Quality of life of caregivers of people with hearing disorder. Tesis (Master's Degree). ItajaÃ: Vale do Itajaà University;2008.
Grelha PASS. Quality of life of dependent olds informal caregivers in home context. Tesis (Master's Degree). (online) Lisbon: University of Lisbon; 2009. Available in: http://repositorio.ul.pt/bitstream/10451/1090/21226_ulsd057824_td.pdf
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