Manifestations of Stigma and Prejudice Informed by Treated Lepers

Authors

  • Arieli Rodrigues Nóbrega Videres Nurse. PhD student of the PostGraduate Program in Nursing at the Federal University of Paraíba (UFPB). Assistant Professor of the Federal University of Campina Grande, Cajazeiras PB-campus (UFCG).
  • Clélia Albino Simpson Nurse. Post-Doctorate from the University of Évora - Portugal. Professor Departamento of Nursing and the Graduate Program in Nursing at the Federal University of Rio Grande do Norte, Natal, Rio Grande do Norte, Brazil.
  • Felismina Rosa Parreira Mendes Nurse. PhD professor at the University of Evora, Portugal.
  • Rita de Cássia Cordeiro de Oliveira PhD in Nursing by the Graduate Program in Nursing at the Federal University of Paraíba. Professor of the University Center UNIPÊ, João Pessoa, Paraíba, Brazil.
  • Karinne Dantas de Oliveira Adário Nurse. Specialist in Health Service Management. Technical Advisor of the Labor Management Board on Health by the Municipal Health Department of João Pessoa, Paraíba, Brazil.
  • Emília Fernandes Pimenta Nurse. Master in Management in Organizations learners from the Federal University of Paraíba. Manager Work in Health by the Health Secretariat of the city of João Pessoa, Paraíba. Deputy Coordinator of the Teaching and Research Integrated Union (UNEPI).
  • Lenilde Duarte de Sá Nurse. Professor Post, Department of Public Health Nursing and Psychiatry and the Graduate Program in Nursing at the Federal University of Paraíba, João Pessoa, Paraíba, Brazil.

DOI:

https://doi.org/10.3823/1918

Keywords:

Nursing, Leprosy, Prejudice

Abstract

Introduction: The segregation of people affected by leprosy in leper colonies as well as presenting itself ineffective, still caused irreversible and irreparable consequences in the lives of individuals who came to carry the marks of stigma and prejudice surrounding the disease.

Objective: To identify traits related to the stigma and prejudice in the content of lepers' 12 speeches, separated compulsorily in the Colônia São Francisco de Assis in the city of Natal, located in the state of Rio Grande do Norte.

Method: Descriptive study focusing on the oral history of life. The narratives were collected in April 2010 through a recorded interview and analyzed by means of the technique of Content Analyses.

Results: The stigma and the prejudice crystallized in our culture had caused and still cause huge suffering and pain in the participants, who grew up and several aged in biological terms, living with a stigmatizing disease and its complications, sometimes disabling ones. In social and psychological terms, they were discriminated, rejected and even expelled from the familiar conviviality and the original social nucleus.

Conclusion: In this manner, one notices the need of these people recover their attachments, values and self-esteem, share feelings and build relationships so as to be integrated in the real world.

Author Biographies

Arieli Rodrigues Nóbrega Videres, Nurse. PhD student of the PostGraduate Program in Nursing at the Federal University of Paraíba (UFPB). Assistant Professor of the Federal University of Campina Grande, Cajazeiras PB-campus (UFCG).

Nurse. PhD student of the PostGraduate Program in Nursing at the Federal University of Paraíba (UFPB). Assistant Professor of the Federal University of Campina Grande, Cajazeiras PB-campus (UFCG).

Clélia Albino Simpson, Nurse. Post-Doctorate from the University of Évora - Portugal. Professor Departamento of Nursing and the Graduate Program in Nursing at the Federal University of Rio Grande do Norte, Natal, Rio Grande do Norte, Brazil.

Nurse. Post-Doctorate from the University of Évora - Portugal. Professor Departamento of Nursing and the Graduate Program in Nursing at the Federal University of Rio Grande do Norte, Natal, Rio Grande do Norte, Brazil.

Felismina Rosa Parreira Mendes, Nurse. PhD professor at the University of Evora, Portugal.

Nurse. PhD professor at the University of Evora, Portugal.

Rita de Cássia Cordeiro de Oliveira, PhD in Nursing by the Graduate Program in Nursing at the Federal University of Paraíba. Professor of the University Center UNIPÊ, João Pessoa, Paraíba, Brazil.

PhD in Nursing by the Graduate Program in Nursing at the Federal University of Paraíba. Professor of the University Center UNIPÊ, João Pessoa, Paraíba, Brazil.

Karinne Dantas de Oliveira Adário, Nurse. Specialist in Health Service Management. Technical Advisor of the Labor Management Board on Health by the Municipal Health Department of João Pessoa, Paraíba, Brazil.

Nurse. Specialist in Health Service Management. Technical Advisor of the Labor Management Board on Health by the Municipal Health Department of João Pessoa, Paraíba, Brazil.

Emília Fernandes Pimenta, Nurse. Master in Management in Organizations learners from the Federal University of Paraíba. Manager Work in Health by the Health Secretariat of the city of João Pessoa, Paraíba. Deputy Coordinator of the Teaching and Research Integrated Union (UNEPI).

Nurse. Master in Management in Organizations learners from the Federal University of Paraíba. Manager Work in Health by the Health Secretariat of the city of João Pessoa, Paraíba. Deputy Coordinator of the Teaching and Research Integrated Union (UNEPI).

Lenilde Duarte de Sá, Nurse. Professor Post, Department of Public Health Nursing and Psychiatry and the Graduate Program in Nursing at the Federal University of Paraíba, João Pessoa, Paraíba, Brazil.

Nurse. Professor Post, Department of Public Health Nursing and Psychiatry and the Graduate Program in Nursing at the Federal University of Paraíba, João Pessoa, Paraíba, Brazil.

 

References

Soomo F, Pathan G, Bhatti N, Hussain J. Awareness of leprosy – knowledge and practices among general practitioners in leprosy endemic areas of Larkana region, Sindh, Pakistan. J Pak Assoc Derma. [Internet]. 2013; 23(3):300-03. Available from: http://www.jpad.org.pk/july-september%202013/10.%20original%20article%20leprosy%20awareness.pdf

Bittencourt LP, Carmo AC do; Leão AMM; Clos AC. Estigma: percepções sociais reveladas por pessoas acometidas por hanseníase. Rev enferm UERJ. [Internet]. 2010; 18(2):185-90. Available from: http://www.facenf.uerj.br/v18n2/v18n2a04.pdf

Cunha VdaS. Isolados ‘como nós’ ou isolados ‘entre nós’?: a polêmica na Academia Nacional de Medicina sobre o isolamento compulsório dos doentes de lepra. Hist Ciênc Saúde – Manguinhos. [Internet]. Rio de Janeiro. 2010; 17(4):939-54. Available from: http://www.scielo.br/scielo.php?pid=S0104-59702010000400006&script=sci_abstract&tlng=pt.

Martins PV, Caponi S. Hanseníase, exclusão e preconceito: histórias de vida de mulheres em Santa Catarina. Ciênc Saúde Coletiva. [Internet] 2010; 15(Supl.1):1047-54. Available from: http://dx.doi.org/10.1590/S1413-81232010000700011.

Cid RDdeS, Lima GGde, Souza Arde, Moura ADA. Percepção de usuários sobre o preconceito da hanseníase. Rev RENE. 2012; 13(5):1004-14.

Marinho FD, Macedo DCF, Sime MM, Paschoal VD, Nardi SMT. Percepções e sentimentos diante do diagnóstico, preconceito e participação social de pessoas acometidas pela hanseníase. Arq Ciênc Saúde. [Internet]. 2014; 21(3):46-52. Available from: http://repositorio-racs.famerp.br/racs_ol/vol-21-3/IDZ-651-(21-3)-jul-Set-2014.pdf.

Lana FCF, Lanza FM, Carvalho APM, Tavares APN. O estigma em hanseníase e sua relação com as ações de controle. Rev Enferm UFSM. [Internet]. 2014; 4(3):556-65. Doi: 10.5902/2179769212550.

Neves IS, Rivemales MCC. Leprosy x social exclusion: updating study. Rev Enferm UFPE Online. [Internet]. 2010; 4(1):377-84. Doi: 10.5205/01012007.

Abedi H, Javadi A, Naji S. An exploration of health, family and economic experiences of leprosy patients, Iran. Pak. J. Biol. Sci. [Internet]. 2013; 16(18): 927-32. PMID: 24502149.

Sá MB de, Siqueira VHF de. Hanseníase, preconceito e parrhesía: Contribuições para se pensar saúde, Educação e educação em saúde. Ciênc Educação. [Internet]. 2013; 19(1): 231-47. Available from: http://dx.doi.org/10.1590/S1516-73132013000100016.

Nunes JM, Oliveira EN, Vieira NFC. Hanseníase: conhecimentos e mudanças na vida das pessoas acometidas. Ciênc Saúde Coletiva. [Internet]. 2011; 16(Supl. 1):1311-18. Available from: http://dx.doi.org/10.1590/S1413-81232011000700065.

Sermrittirong S, Van Brakel WH. O estigma da hanseníase: conceitos, causas e determinantes. Lepr Rev. 2014; 85(1): 36-47.

Adhikari B, Kaehler N, Chapman RS, Raut S, Roche P. Factors affecting perceived stigma in leprosy affected persons in western Nepal. PLoS Negl Trop Dis. [Internet]. 2014; 8(6): 2940. Doi: 10.1371/journal.pntd.0002940.

Borges E, Medeiros CA, D’Adesky J. Racismo, preconceito e intolerância. São Paulo: Atual; 2002.

Meihy JCSB, Holanda F. História oral: como fazer, como pensar. São Paulo: Contexto; 2007.

Bardin L. Análise de Conteúdo. Lisboa (Po): Edições 70; 2009.

Leite SCC, Sampaio CA, Caldeira AP. “Como ferrugem em lata velhaâ€: o discurso do estigma de pacientes institucionalizados em decorrência da hanseníase. Physis: Rev Saúde Coletiva. [Internet]. Rio de Janeiro. 2015; 25(1):121-38. Available from: http://dx.doi.org/10.1590/S0103-73312015000100008.

Gusmão APB, Antunes MJM. Ter hanseníase e trabalhar na enfermagem: história de lutas e superação. Rev Bras Enferm. [Internet]. Brasília. 2009; 62(6): 820-4. Available from: http://dx.doi.org/10.1590/S0034-71672009000600003.

Castro SMS, Watanabe HAW. Isolamento compulsório de portadores de hanseníase: memória de idosos. Hist Ciênc Saúde – Manguinhos. [Internet]. Rio de Janeiro. 2009; 16(2): 449–87. Available from: http://dx.doi.org/10.1590/S0104-59702009000200010.

Lanza FM, Vieira NF, Oliveira MMC, Lana FCF. Evaluation of the Primary Care in leprosy control: proposal of an instrument for users. Rev Esc Enferm USP. [Internet]. 2014; 48(6):1054-61. Doi: 10.1590/S0080-623420140000700013.

Silva RCC da, Vieira MCA, Mistura C, Lira MOSC, Sarmento SS. Estigma e preconceito: realidade de portadores de hanseníase em unidades prisionais. J. res.: fundam. Care. [Internet]. 2014; 6(2):493-506. Doi: 10.9789/2175-5361.2014v6n2p493.

Palmeira IP, Queiroz ABA, Ferreira MA de. Marcas em si: vivenciando a dor do (auto) preconceito. Rev Bras Enferm. [Internet]. 2013; 66(6): 893-900. Available from: http://dx.doi.org/10.1590/S0034-71672013000600013.

Miranda CAS. Hanseníase – o impacto da representação social e a crise identitária. João Pessoa: Ed. Universitária; 1999.

Mellagi AG, Monteiro YN. O imaginário religioso de pacientes de hanseníase: um estudo comparativo entre ex-internos dos asilos de São Paulo e atuais portadores de hanseníase. Hist Ciênc Saúde –Manguinhos. [Internet]. Rio de Janeiro. 2009; 16(2):489–504. Available from: http://dx.doi.org/10.1590/S0104-59702009000200011.

Downloads

Published

2016-04-11

Issue

Section

Infectious Diseases

Most read articles by the same author(s)

1 2 > >>